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Lotus   26-03-2024, 03:28 AM
(24-03-2024, 08:34 AM)it_ll_be_fine Wrote: Lotus, I've been away for quiet awhile and to find out that you have CML is just devastating.  Crying

Considering you are in the accelerated phase, and considering it went undiagnosed for so long, has your doctor broached the topic of a bone marrow transplant?

It has shown to be successful in other patients and it I think has a better success rate than TKI's alone. 

I'd have to believe that the short term expense for your insurance, considering it could send you into remission, would be a no brainer. 

Thinking of you!

Hi, it_ll_be_fine, thanks for your question, advice and concern.  Heart (Welcome back).  Hug

I don't think we're at that point of doing a BMT (bone marrow transplant) just yet... I could be wrong, lol. I'll be going through some new rounds of testing in April, such as a BCR-ABL scan and looking close at my blast cells. My one and only BCR-ABL came back at 82% (meaning of the blood cells tested 88% were cancerous). Currently, I'm on a TKI (tyrosine kinase inhibitor) for my CML (chronic myeloid leukemia) that's lowered my WBC (white blood cell) levels to what's considered at the top end of normal reference range. So, the medication is doing its job… but, I still get to enjoy all the crappy parts of having CML side effects Wink I'm a fighter though, and that's what I'm doing (@ fighting). 

Thank you for your thoughts on BMT, if I get there I'll let everyone know.  Blush  

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